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Jessie May Trust
The Jessie May Trust is a Bristol-based charity raising funds for terminally ill children and sponsoring nurses to provide them with hospice care at home.
The charity was started by the parents of Jessie May, who died at the age of just four and a half months. Since 1996 it has been providing home care, free of charge, for terminally ill children in Bristol, North Somerset and South Gloucestershire and will shortly extend into Bath and North East Somerset.
To be told that your child will die before you is every parent’s worst nightmare. For many families in the local area, this is a reality. Some of these children will die when they’re very young; others will deteriorate slowly over a number of years, and their full-time care usually falls to parents who have to cope – 24 hours a day, 7 days a week, 365 days a year.
Jessie May recognises that the whole family is under huge emotional and physical strain. Through their team of dedicated Children’s Nurses and Nursery Nurses they provide specialist care and support to help alleviate some of this pressure. This support is provided in the comfort of the family’s own home whenever possible from the time of diagnosis onwards.
Each child is central to the service they provide and they believe in helping the children reach their potential and to make the most of the precious time they have.
The care they provide is holistic and family-centred, working closely with other professionals involved in supporting the family to ensure continuity of care and that all needs are met, whether physical, emotional, social or spiritual.